Coming to terms with being a 38-year-old man with Asperger’s, having only been diagnosed a few weeks ago, has naturally lead to reexaminations of my behavior. The first things I’ve focused on have been those aspects of my personality that put me blatantly at odds with the rest of the species, such as my extreme introversion, my inability to read others’ signals or intentions, and my aversion to overstimulation.
But as some of this has begun to settle, I also find myself going a few layers deeper, and I realize just how much of my identity is wrapped up in how I’ve compensated for the hindrances of Asperger’s. Some of the more interesting exploration is not about my differences, but my adaptations — the behaviors I’ve adopted to mitigate those differences. Successful adaptations, even.
As I’ve noted before, some people have trouble accepting my Asperger’s diagnosis as a valid one, because all they see are the adaptations. They see me as someone who’s generally smart and funny and well spoken, someone who is obviously not “the average guy,” but someone a little different, just a little odd, and harmlessly so. A bit nerdy, a little geeky, and humorously self-effacing about all of it. Maybe a little too self-effacing, but oh, that’s just Paul. One of his many quirks.
That’s me. I’m quirky.
Paul says some weird things sometimes, or Paul gets oddly quiet and distant, or Paul seems to find everything funny, but also every once in a while he takes something too seriously, and talks a little too much, too fast, and too loud. But that’s just his quirkiness.
If anyone comes away with that impression of me, as “quirky,” then I have successfully adapted as best I could. Once it became clear to me, probably around my mid-teens, that I was never going to be considered “normal,” and not even in the same universe as “cool,” I decided (partly consciously, partly unconsciously) that I would adopt a quirky identity. I’d be the funny sidekick, the sarcastic friend, vaguely-artsy oddball, just minimally different enough to cover up just how utterly alien I actually felt. My quirkiness was like a white noise machine to help muffle and distract from the sound of the train line running right next to the house.
Decades of this practice led me to believe that the act was who I really was. In a new social setting, I’m harmless-quirky, making little jokes when it seems safe to do so. With bosses, I’m grinning-idiot-quirky, engaged and overly eager to agree. With closer friends, I’m wry-quirky, able to vent a little of my misanthropic steam, but in a safe and humorous way. And so on.
It even extends into my online persona, where the facepalming-Paul avatar has become my unofficial insignia. I have a quirky logo.
Some of it is natural, some of it is very much forced. But over the years I think I may have gotten so good at it that I don’t know when I’m “working” and when I’m just “being.”
But without this adaptive behavior, I don’t know how I would have navigated the real world. Maybe if I had known I had Asperger’s, and accepted the things that made me different, I wouldn’t have bothered to try so hard to please and to pass. What would I have been like? What happens if I decide to drop the quirk now? What will I be?
I think the scary answer to that is: sincere. I’d be sincere.
I am not an insincere person, per se, not in the way we usually think of that term. I’m not two-faced or deceptive or phony. What I mean by sincerity is a dropping of unnecessary pretenses and performances, allowing whatever person was behind those masks to come out and breathe.
I can’t say with any exactness, but I suspect this hypothetical sincere version of me would be less expressive when in the company of others. Even in conversation, I might look distant or even severe, even if my actual feelings were entirely benign. I would interject less often, and save my words for when they might contribute to something. That might make me appear disinterested or “shy,” even if I felt neither. A more sincere version of me might excuse himself entirely earlier and more often in order to recover from the stresses of stimuli.
A sincere version of me would be less concerned with a projected personality, online and off. He would not think so much about cultivating a “brand” for himself, and simply let his work and his words speak for themselves. It would likely have no impact on the number of Twitter followers I could boast, and this version of me (again, hypothetical) wouldn’t concern himself with that anyway, because why bother.
This sincere-me would relieve himself of the stress engendered by worrying over what people thought of his various interests and obsessions. Contemporary geek culture has made the world a safe place for folks to proudly parade their allegiance to various fiction franchises, but that’s not quite what I mean, because what that really adds up to is a new in-group that happens to be made up of people who once languished in out-groups. That’s good and fine, but not what I mean.
I mean that when I have a driving obsession with something that holds no obvious value to anyone but the satisfaction of my own brain, that’s not a failing. It’s not something to be embarrassed about or ashamed of. I can just pursue that interest (within reason and feasibility) without regard to the opinions of others.
And I – I mean this hypothetically sincere version of me – wouldn’t have to make excuses for any of it. He wouldn’t have to apologize, and qualify himself with “I know this is weird” or “this probably seems silly, but…” He…I…would just follow the string of curiosity where it leads, and allow my brain its squirts of dopamine whenever they can be safely had.
The last bit of this is the hope that sincere-me would not indulge his autism and oddness at the expense of his responsibilities to those he loves. I don’t see that as a problem, because one thing that even quirky-me can be sincere about is my love and devotion to my wife and kids. I don’t need to “act” that, no“passing” required. Come to think of it, I’m very lucky for that.
The adaptations of Asperger’s have been enormously expensive in countless ways. They have eaten up time, energy, and my valuation of myself. Maybe over time, as I truly come to terms with this condition and its implications, I can begin to turn down the dials, divert power away from the quirk-generators, and recoup some of what I’ve lost. I would sincerely like that.
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